Improvement of SLE patient data recording

Oct 13, 2025 by pinkandtrash.com 108 views

Characteristics of Systemic Lupus Erythematosus (SLE) Patients who were hospitalized at H. Adam Malik Hospital in Medan 2015-2017

Introduction

Systemic lupus erythematosus (SLE) is a chronic autoimmune inflammatory disease whose cause is unknown, with a variety of clinical manifestations. It is a complex and multifaceted disease that affects millions of people worldwide. In Indonesia, the incidence of SLE continues to increase, with the death rate due to this disease reaching 25% in 2016. This study aims to explore the characteristics of SLE sufferers undergoing treatment at H. Adam Malik Hospital Medan during the 2015 to 2017 period.

Background

SLE is a chronic autoimmune disease that affects various organs and systems in the body. It is characterized by periods of flares and remission, with a wide range of clinical manifestations. The disease is more common in women than men, and the exact cause is still unknown. The incidence of SLE is increasing globally, and it is estimated that 1 in 2,000 people will develop the disease.

Methodology

This study used a case series design followed by statistical analysis using computer applications. The total sample analyzed was 280 medical records of SLE sufferers who were hospitalized at H. Adam Malik Hospital Medan during the specified period. The data used is secondary data presented in the form of narration, frequency distribution tables, circle diagrams, and stem diagrams.

Research Result

The results showed that the highest proportion of SLE sufferers was in the age group 15-45 years (82.9%), which was dominated by women (95.4%). The majority of patients have high school education levels or equivalent (52.5%) and work as students (42.9%). Most of them are Muslim (66.1%) and not married (58.6%). Interestingly, 76.4% of patients came from outside the city of Medan, showing that H. Adam Malik Hospital became a reference for SLE patients from other regions.

The most common clinical manifestation of clinical is constitutional manifestations (100%), and 65% of patients experience severe clinical manifestations. Medical management carried out is aggressive therapy at 65% of patients, with an average length of time reaching 11 days. At the time of returning home, 70% of patients get further treatment outpatient, and 96.4% of them use the source of JKN costs.

Analysis and Explanation

Characteristics of SLE patients found in this study can provide a clear picture of the patient's demographic and clinical conditions. The high incidence in the productive age group (15-45 years) shows that SLE can affect the quality of life of individuals at the age that should be active in education or work. The dominance of female sex in this case confirms the previous findings in medical literature that SLE is more common in women than men.

The importance of prevention and early detection efforts for the population is very emphasized, given the potential for high death and the complexity of this disease. Awareness of the initial symptoms of SLE and access to adequate health facilities is the key to reducing the incidence and increasing the prognosis for patients.

Implication and Conclusion

In addition, the results of this study also advised the hospital, especially the medical record, to improve and complete the recording of SLE patient data. Accurate recording will help in further research and developing more effective handling strategies in the future.

In the context of treatment, patient compliance with the recommended therapy regimen is also a key factor in SLE management. SLE sufferers must be given adequate education about the importance of sustainable treatment and monitoring health conditions to prevent more serious complications.

Recommendation

Based on the findings of this study, the following recommendations are made:

Improvement of SLE patient data recording: The hospital should improve and complete the recording of SLE patient data to facilitate further research and develop more effective handling strategies.
Patient education: SLE sufferers must be given adequate education about the importance of sustainable treatment and monitoring health conditions to prevent more serious complications.
Prevention and early detection efforts: The importance of prevention and early detection efforts for the population is emphasized, given the potential for high death and the complexity of this disease.
Access to adequate health facilities: Awareness of the initial symptoms of SLE and access to adequate health facilities is the key to reducing the incidence and increasing the prognosis for patients.

Conclusion

This research makes an important contribution in understanding the characteristics of SLE sufferers and underlines the need for special attention in handling this complex autoimmune disease. The findings of this study can provide a clear picture of the patient's demographic and clinical conditions, and can be used to develop more effective handling strategies in the future.
Frequently Asked Questions (FAQs) about Systemic Lupus Erythematosus (SLE)

Q: What is Systemic Lupus Erythematosus (SLE)?

A: Systemic Lupus Erythematosus (SLE) is a chronic autoimmune inflammatory disease that affects various organs and systems in the body. It is characterized by periods of flares and remission, with a wide range of clinical manifestations.

Q: What are the common symptoms of SLE?

A: The common symptoms of SLE include:

Fatigue
Joint pain and swelling
Skin rashes
Hair loss
Fever
Chest pain
Headaches
Seizures

Q: Who is at risk of developing SLE?

A: Anyone can develop SLE, but it is more common in women than men. The risk of developing SLE is also higher in people with a family history of the disease.

Q: What are the treatment options for SLE?

A: The treatment options for SLE include:

Medications to reduce inflammation and suppress the immune system
Corticosteroids to reduce inflammation and suppress the immune system
Immunosuppressive medications to reduce the immune system's response
Biologics to target specific proteins involved in the disease
Lifestyle changes, such as getting regular exercise and eating a healthy diet

Q: Can SLE be cured?

A: There is no cure for SLE, but with proper treatment and management, it is possible to control the disease and prevent complications.

Q: How can I manage my SLE symptoms?

A: To manage your SLE symptoms, you should:

Take your medications as prescribed by your doctor
Get regular exercise to reduce fatigue and improve joint mobility
Eat a healthy diet to reduce inflammation and support overall health
Get enough sleep to reduce fatigue and improve overall health
Avoid stress and anxiety, which can trigger flares

Q: Can I get pregnant with SLE?

A: Yes, it is possible to get pregnant with SLE, but it is essential to discuss your treatment options with your doctor before becoming pregnant. Some medications used to treat SLE can increase the risk of birth defects.

Q: Can I donate blood with SLE?

A: No, it is not recommended to donate blood with SLE. The disease can increase the risk of blood clots and other complications, which can be transmitted to the recipient.

Q: Can I participate in sports with SLE?

A: Yes, it is possible to participate in sports with SLE, but it is essential to discuss your treatment options and any limitations with your doctor before engaging in physical activity.

Q: Can I travel with SLE?

A: Yes, it is possible to travel with SLE, but it is essential to discuss your treatment options and any limitations with your doctor before traveling. You should also take necessary precautions to prevent flares, such as avoiding stress and getting regular exercise.

Q: Can I work with SLE?

A: Yes, it is possible to work with SLE, but it is essential to discuss your treatment options and any limitations with your doctor before returning to work. You should also take necessary precautions to prevent flares, such as avoiding stress and getting regular exercise.

Q: Can I get disability benefits with SLE?

A: Yes, it is possible to get disability benefits with SLE, but it is essential to discuss your treatment options and any limitations with your doctor before applying for benefits. You should also provide documentation from your doctor to support your claim.

Q: Can I get life insurance with SLE?

A: Yes, it is possible to get life insurance with SLE, but it is essential to discuss your treatment options and any limitations with your doctor before applying for insurance. You should also provide documentation from your doctor to support your claim.

Q: Can I get health insurance with SLE?

A: Yes, it is possible to get health insurance with SLE, but it is essential to discuss your treatment options and any limitations with your doctor before applying for insurance. You should also provide documentation from your doctor to support your claim.

Q: Can I get financial assistance with SLE?

A: Yes, it is possible to get financial assistance with SLE, but it is essential to discuss your treatment options and any limitations with your doctor before applying for assistance. You should also provide documentation from your doctor to support your claim.

Q: Can I get support groups with SLE?

A: Yes, it is possible to get support groups with SLE. There are many online and in-person support groups available for people with SLE. These groups can provide emotional support, education, and connection with others who understand what you are going through.

Q: Can I get online resources with SLE?

A: Yes, there are many online resources available for people with SLE. These resources can provide education, support, and connection with others who understand what you are going through. Some online resources include:

Lupus Foundation of America
Lupus Research Alliance
SLE Support Group
Lupus Online Community

Q: Can I get medical professionals with SLE?

A: Yes, there are many medical professionals who specialize in SLE. These professionals can provide education, support, and treatment for people with SLE. Some medical professionals include:

Rheumatologists
Immunologists
Dermatologists
Gastroenterologists
Nephrologists

Q: Can I get clinical trials with SLE?

A: Yes, there are many clinical trials available for people with SLE. These trials can provide access to new treatments and medications, as well as the opportunity to contribute to the advancement of SLE research. Some clinical trials include:

Lupus Clinical Trials
SLE Clinical Trials
Rheumatology Clinical Trials
Immunology Clinical Trials

Q: Can I get research studies with SLE?

A: Yes, there are many research studies available for people with SLE. These studies can provide access to new treatments and medications, as well as the opportunity to contribute to the advancement of SLE research. Some research studies include:

Lupus Research Studies
SLE Research Studies
Rheumatology Research Studies
Immunology Research Studies

Q: Can I get patient advocacy with SLE?

A: Yes, there are many patient advocacy groups available for people with SLE. These groups can provide education, support, and connection with others who understand what you are going through. Some patient advocacy groups include:

Lupus Foundation of America
Lupus Research Alliance
SLE Support Group
Lupus Online Community

Q: Can I get patient education with SLE?

A: Yes, there are many patient education resources available for people with SLE. These resources can provide education, support, and connection with others who understand what you are going through. Some patient education resources include:

Lupus Foundation of America
Lupus Research Alliance
SLE Support Group
Lupus Online Community

Q: Can I get patient support with SLE?

A: Yes, there are many patient support resources available for people with SLE. These resources can provide education, support, and connection with others who understand what you are going through. Some patient support resources include:

Lupus Foundation of America
Lupus Research Alliance
SLE Support Group
Lupus Online Community

Q: Can I get patient resources with SLE?

A: Yes, there are many patient resources available for people with SLE. These resources can provide education, support, and connection with others who understand what you are going through. Some patient resources include:

Lupus Foundation of America
Lupus Research Alliance
SLE Support Group
Lupus Online Community